Children’s Hospices Across Scotland (CHAS) Provides the only hospice services in Scotland for children and young people who have life-shortening conditions for which there is no known cure.
What? Why? Children in Hospital (WWCIH) WWCIH produces videos for parents and carers suitable for children to help children and parents prepare for hospital and answer some of their questions.
Children's Health Scotland Information and advice to parents and families on any aspect of caring for a sick child or young person, including their healthcare rights.
Cleft Lip & Palate Association (CLAPA) Offers local parent-to-parent support through its nation-wide network, a specialist service for parents seeking help feeding babies with clefts and much more.
Heart conditions in babies (British Heart Foundation) Booklets for parents and carers to help you understand Congenital heart disease in babies and young children.
Scottish Network for Arthritis in Children (SNAC) Set by parents of children with juvenile idiopathic arthritis (JIA), the SNAC provides support, and information about the condition, treatment options and living with JIA.
Together for Short Lives Information about what care and support is available for families of children with life-limiting or life-threatening conditions. They have a helpline.
Young Lives vs Cancer Care and support for families with a child who has cancer, from specialist social workers and nurses, to free accommodation near hospitals. They have a helpline.
Cystic Fibrosis Trust Support, advice and information for families of children and babies with cystic fibrosis through helplines and publications and online services.
Child Brain Injury Trust Provides information, support and training to anyone affected by childhood acquired brain injury.
