Together for Short Lives
Information about what care and support is available for parents, family members and carers of children who have been diagnosed with a health condition which means they may not live to reach adulthood.
Their telephone helpline and website provide families with resources, information to make sure you know exactly what you are entitled to, and have the knowledge you need to be able to make choices and stay in control of your child's care.
Together for Short Lives was formed in 2011 by a merger of ACT and Children's Hospices UK.
Website:
Contact details:
New Bond House Bond Street Bristol BS2 9AG
Phone: 0117 989 7820
Helpline: 0808 8088 100
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Disclaimer
Although we try only to give useful sources of support and information, this is not a recommendation or endorsement by Parenting across Scotland. We take no responsibility for the content of other websites and the services other organisations provide.